Showing posts with label Special needs. Show all posts
Showing posts with label Special needs. Show all posts

Wednesday, December 7, 2016

Sooner Success A Failure?

Sooner Success’(found at this url http://soonersuccess.ouhsc.edu/ ), originally the way I understood the concept, formative innovative concept to help the disability community including the person and family in Oklahoma hung on the personal spin. Oklahoma would place a coordinator in every county.
Another word for this coordinator that sums up my understanding of job is a liaison or go between. When parents were stressed locating the necessary resources for their child or adult child with disabilities getting a hold of the Sooner Success County Coordinator was the end all to problems encountered by families. Whatever the community needed this person could do. Some examples might be help filling out forms, simply giving out information or helping get necessary training in the county. I thought this meant, believe I read this at one time, that the Coordinator would contact other agencies and programs or see what the hold up seemed to be. Also, I thought this meant going with parents if needed.
How many know what the Switcheroo is a con game? Now, I realize verification is best. Heck, if I had known this was coming, I would have taken down the exact specifications listed by Sooner Success. My memory is darn near close to needling past pretty good to excellent on the scales. But because I believe this agency is pulling the old bate and switch with their mission statement I can’t prove this. Sooner Success as an agency is a baby that already learned to downsize their programs to a limited amount learning the term “referral” very fast.
Here below are some other “referral” agencies or groups funded by either the state, federal or both:
Oklahoma Family Network (has been rolled up into this program somehow I think)
Oasis (which has been rolled up into this program somehow I think)
Oklahoma Autism Network
Center For Learning and Leadership
Parent Center
Disability Law Center
Possibly Disability Council?
There are other groups that act as “referral” agencies. Many that refer people provide trainings and a few other services. MY MAIN POINT IS THAT THE INDIVIDUAL PERSONAL SERVICE of being a liaison aiding the disabled community with resources while cutting through red tape disappeared in puff of smoke. I know because when trouble cropped up during an application process my phone call to the coordinator wastes my time during my efforts locating services and resources for my son with autism..
Theoretically, a county coordinator can start a job without a college degree and a salary higher than a teacher. Do any of you own a business? If you use a professional do you always seek out another to check their work? Why as a tax payer, would you want to waste this much money in duplicating services where the end produces little improvement in service to the target client? If duplication, triplification or quadruplication of agencies were cut with the a state question mandating the savings were to spent on services to the target clients in the form of therapy, transportation or things that improved quality of life in carefully worded language; would you vote for this measure? How about the same area serving elderly?
Pretend for a moment your profession is one of investigations. This time the target is School Support Services (found at this url https://www.oumedicine.com/department-of-pediatrics/department-sections/devbehav/child-study-center/programs-and-clinical-services/school-support-services) is another agency or group set up to support those with learning disabilities or developmental delays. My comprehension of this program is funding comes from both federal and state governments and Oklahoma school districts also required to pay to use the services. A number of years have elapsed since dealing with this group. Here is another url http://autismcenterok.org/ to go to if interested; I EMPHASIZE THIS IS A MUST!
Rephrasing of mission statements and websites reworked for optimal eye appeal known as marketing resulting in changes to this area have occurred since my last visit. I recollect words to the effect that a child in need or family without the resources for school support services or early autism treatment would receive treatment regardless of financial status. Agencies or groups wise up. You see I liked what I read on this site about evaluations. Insurance didn’t pay for these things back then and expensive was stamped all over the services.
I inquired of my son’s teacher at the time. Of course his teacher said she was in fear for her job. Requesting services that cost a school district money are doubtfully the way to get on the escalator to a promotion for teachers. My mind went to questioning a few things. You see my resume contains a manifold list of skills, jobs, education and volunteer areas. As a pharmacist, I am familiar with the concept of “capitation.” This process is where an insurance group, usually a health maintenance organization (HMO) pays a provider (doctor or medical group) one fee to cover the medical needs say for instance you own a business and you purchase insurance from this HMO to give medical insurance to your employees. Another form of this business arrangement is if in your business you pay one fee a year to a maintenance provider to keep all your machines like printers and computers working. If your machines never break down it is basically an insurance to keep you up and running. However, if you have multiple breakdowns the cost to you for this expense is the same.
Besides being a pharmacist, I have a Master’s of Science in Management. I taught high school for a little over a year via alternative certification. I went back to pharmacy for less hours, better benefits, needing family time to work with my son age three that had autism because insurance didn’t cover all the therapy needed, and I hate to say this loving most of the children but better working conditions overall. Volunteering expands my skills into a variety of other areas.
The only people that might provide an answer to some of the questions racing through my mind had to be the financial office of the school district. Thus, I called. “Does the district have a contract with School Support Services at OU? Plus, if the district does is it a per use cost agreement or a capitation contract?”
“Yes, our district has a contract with School Support Services that stipulates capitation as the agreement for services. I am sure you understand this but that means we pay one fee for the service and the number of uses is unlimited to be regulated only by making appointments that are reasonable. Office machine repair is commonly entered into in this manner. Did you understand what I said? Can I help you further or do you require more information or assistance?” Asked the lady on the other end of the phone at my son’s school district financial office.
“NO THANK YOU! I do appreciate your time and the information you have given me. I get what you said and need no explanation or further assistance. Again, thank you very much for your help and all the time. You have no idea how grateful I am to get this data. Have a nice day. Bye.” Chirping in a happy mood I hang up the phone.
Next, I call School Support Services. You see after my wreck in 2008 I had time to research and locate more resources for my son with autism. The school district my son went to offered plenty to him and the family for which I was thankful. The special education director advertised on Cox Cable’s Community Channel that was in existence at the time. The library had a weekly comment newsletter with events listed for people to take. One time I sat down to discuss this with him. He told me he advertises the school district’s responsibility to search out children age 3 to 21 with disabilities and provide necessary services for them after an evaluation process to se if they met qualifications for the program.
School Support Services says to contact them or your school district for services. During my call I asked, “Why don’t you list the districts you have a contract with on your website!”
This way parents will know in advance if the district is trying to side step issues with them. After the wreck a number of the programs like this one were about teaching me to write a lengthy IEP (Individual Education Program) detailing and trying to get the schools to pay for as much as possible. To a point I get this. What people do not realize is the schools have limited resources in budgets already. Another big problem is teacher’s are pushed to the max. I think it comes down to a piece of paper that means little if the teacher is trying but cannot execute the IEP or the school district for that matter.
School Support Services asked me how I found out the contract with school district’s based on capitation and much more. I told them it took a little thinking and asking key offices a few questions to get the knowledge I sought. Then I went on to say that I believed some parents gladly would pay or offer donations to supplement the balance I knew the program was leaking. Trust me I knew even with all the support from federal, state and one time fee from the school districts, costs for the program were over the total sum. Yet, as a parent I knew the cost of paying privately for this and seeing it reduced drastically was something I could appreciate. My suggestions for innovations or doing things different fell on deaf ears like every time I offer such a solution.
School Support Services is one example of many groups that like to hold the schools accountable for so many sins. In so many frames of times I have turned the tables to explore how a group can be or should be more responsible to most innocent, needy and helpless segments of our community in their outreach to provide a service to this community to be met with vile distaste for my suggestion in acceptance of any responsibility in this area.
Neither of these agencies or groups is alone in a sea of entities servicing the disabled. Disinformation or being given out right wrong info starting me down a journey on Wrong Street is an event of more than one date. Reaching out for services for my son that would provide basic housing and supports when my husband I die because there is no family or siblings for him to fall upon if he doesn’t reach the potential I think he will concluded in another fiasco of similar outcomes. Once I had my son in this program, which one must gain entrance before the age of twenty-one now due to changes in policy, the service, people and program is excellent for what the budget allows. I tried to call people to tell them but they are tired of what they perceive as anger and rhetoric.
It is late and I am tired but there is more. I will write about these another day. Yet, I have to talk about the good I found too. Martin, then an employee of the Center for Learning and Leadership found a social group, OKAY, for my son that ran by a special lady that retired now. Dee Blose allowed me to volunteer and help a group of young adults that gave me so much more than I gave. Jody Harlan, that works for Oklahoma Department Vocational and Rehabilitation Services, has been available to answer questions and on occasion advocate for me. Joni Bruce, head of Oklahoma Family Network, is owed a few thanks for things she has done helping me with agendas associated with doing right or locating resources for my son’s needs.

Wednesday, July 1, 2015

Hold on to your drawers.

Going through some old things in a "JUNK HEAP," I found this drawer and old candy shipment boxes. I got the idea to do a collage in a drawer; while using the drawer as the frame.
This project is unfinished. I will post an update when it is.
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"FLEA MARKET FLIP," has been an inspiration for me. Below is another
attempt at flipping.
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Here is a drawing of a friend
I wad afraid to show her. I thought she might think it less than flattering. Here is where esteem gets in the way of accomplishing things you dream you could of, would of and might have.
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Plus, let me share a few more of my art attempts.
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Summer brings me to a list of "Flip" projects I plan on jumping on soon.
*******I see the creation of art and "flipping" or reinventing as a gate to setting up businesses that fit special needs, autism and such.  These groups,  often, in my eyes, with an innate sense of creativity, bring about options that others muss because it isn't obvious to them.
If you have insights, information or feedback (negative or positive, plz state in a positive manner, skipping tacky) you wish to share or comment; I look forward to it! I really see growing from this as an opportunity instead of dumping on my feelings.  I already shared am example of letting my feelings keep me from this an enjoying new areas of life.

Monday, April 27, 2015

Obvious Trouble with Current Accepted Disability Advocacy; Pointing Out What is Wrong!

Having a disability and being able to identify this.  My son has taught me a lot about this.  It is a very touchy subject.   There is an advantage to saying I have blank.  When a person goes to Secondary Education and asking for the help that is needed means naming your disability.
Consider these things about having to say I have blank.  How many people like being singled out?  Do you want to be known for being different or having a disability?  Did you want to belong to specific groups?  How many realize the peer pressure teens with disabilitiies face?  Are called stupid or dumb for going to Lab Class for help?   Going through all these issues at or during adolescent? Recall Freak Shows at the Fair and Circues?  
Many teens and people in general with a disability see themselves as being flawed.  A number of those in this population feel like naming their disability means something is wrong with them.  A few might consider themselves less than whole.  
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This is my son Tanner Mack Adcock.  Every time I have tried to teach him about his disability and to name it; he gets upset.  He doesn't want to be known as a person with a disability.  He is adamant he doesn't have a disability. Being in an inclusive Oklahoma History, one incentive for him to do good without any accommadations is to be able to stay in the classroom and take tests or whatever. If a child or teen goes to lab for help he might be labled as Retarded. 
Another issue I have with what is considered correct Disability Advocacy deals with having teens lead their IEP meetings.  This can be an awful amount of pressure for a teen.  What teenager really knows what they want to do? Would we consider letting those labeled "normal" lead a class?  Be in charge of more?  Actually when I taught high school Biology I had teens present a paper, be video taped and have the so called authority of teaching the class.  Their material was on my test. I gave them what I got.  Which was asking to go to the bathroom and such.  
Please understand, I believe that the interests of the teen are paramount.  I only feel that direction of the meeting needs to be left in the hands of adults and direct the teens in having a meeting that covers all the things that should be done for him.  Trust me how many teens declare a college major and end up with that being their final degree path?  More should be expected from these teens.
How many teens with disabilities go on to be successful?  How many owe that to a parent that has pushed the teen to contiue exploriong a path?  Looking at jobs and pushing the teen to continue on in career or other?
Had I to do it over, I would been less about my son saying he has autism and more about him understanding when to ask for help.  Then I would have explained more about how some people have specific needs and identified the people like President George Washington had huge spelling problems but overcame them.  I would explain that people that have challenges need assistance and by understanding that this label may mean you can overcome this with a specific thing.
Does everybody know that a Blind person needs a cane or that a cane greatly increases his/her ability to get around? search  Do we keep telling a person that is Blind to identifiy his disability or spend more time teaching him to use a cane to get around?  How much time do we spend on teaching a person that needs a wheelchair that he has a mobility disability? search-1   Or, do we concentrate on teaching him/her to use the wheelchair to get aroud?  
If I could go back and do it over; I would center my time and energy on teaching my son to grasp his needs to master challenges in life and be able to communicate that to others.  Conveying to my son the importance of being able to ask for and communicate how support is a necessity for meeting the demands of this world.   Or, somehow be more positivie in getting him to name his disabilities to be succesful in this world be where I placed my resolve with him.
I believe that being politically correct and following the trends in Disability Advocacy is less important than doing what is needed.  I failed to listen to my son in his insistent of prefering to be identified as normal or not disabled.  What I hope to convey in this post is for you to understand you the authority on your child.  Try to listen to them and find a way to do what is needed without being afraid you are doing the right or correct way.
Become confident in yourself with regard to your child.  There are no better specialists on a child than their parent or Guardian.  Please learn from my mistakes.  Instead of helping my son name his disability, I conveyed to him that he is different or that I think he there is something wrong with him.  I am sure you know this was not my intent. Raising any child is scary. Trials and life associated with raising and planning for a child with extrodinary abilities is daunting. 
If you have advice to me, disagree with my slant on this or other; commenting is crucial to boost parents or those working with this population to teach them how to do this.

Monday, December 22, 2014

You know you have a child with Autism when

#autism #autism humor #autism Christmas #Asperger's #High Functioning Autism #ADD #ADHD #Christmas Celebration #learning disabilities God

I decided to feel in this blank and the results were so amazing I am posting my feel in the blank answer.

For the humor side of autism.....You Know you have a child with autism...when at Christmas you are thinking of renting a child to open presents

Tuesday, December 16, 2014

Merry Christmas -N-Blessings 4 -2015

HAPPY BIRTHDAY JESUS
REMIND US YOU ARE THE REASON FOR THE SEASON!

TANNER'S 17TH BIRTHAY

Bill with the babies: Sandie and Spike(Now in heaven)
 TANER WINNING FIRST PLACE IN 100 METER DASH SPECIAL OLYMPICS STILLWATER, OK
 MERYY CHRISTMAS
TANNER AT JUNIOR PROM 2014
 SUMMER 2014 VISTING BIG RED BARN ARCADIA, OK
 CELEBRATING TANNER'S 17TH BIRTHDAY
  CELEBRATING TANNER'S 17TH BIRTHDAY(FAVORITE AUNT TWILA MALLO)
  CELEBRATING TANNER'S 17TH BIRTHDAY


 TANNER ABOUT TO SIT FOR SENIOR PICTURES



Friday, December 12, 2014

Link To Reddit's Autism news accumulation

http://www.reddit.com/r/autism

Homemade Crafted Sensory Tunnell how to link

http://www.andnextcomesl.com/2014/12/homemade-sensory-tunnel.html

BLOG POST ON AUTISM AND CHRISTMAS GIFTS SEE LINK

http://fromabcstoacts.com/autism-friendly-christmas-gift-ideas

Autism Source Org

http://www.autismsource.org/

AUTISM NETWORK INTERNATIONAL

http://www.autismnetworkinternational.org/

Wednesday, December 3, 2014

Link about Space Launch; How much contribution has been made to the space Program by Autism?

http://www.businessweek.com/articles/2014-12-02/nasas-orion-test-flight-gets-us-closer-to-mars
Visual and spatial strengths!!  Plus, repeated patterns...ability to see patterns..
*********Often been found that engineers run in families.....autism too.
How much do we owe to autism with regard to the Space Program?
******Remember Temple Grandin's Grandfather invented the auto pilot for planes!!

Thursday, November 27, 2014

My Drag Way Path to Divorce or Seperation?


If a person has a bunch of rules about when this are that can take place, how things must go and has little tolerance; RUN!!!  This only means as it appears to you.  For your perceptions are the only things you have to decide what you want in life, should run away from and embrass if you choose.
Disagreements are the norm.  However, each of you have a different life.  This is especially true if you both work. Therefore these little syptoms go ignored like many with the illness of cancer.  By the time you realize the differences are of concern; like cancer it is highly likely it could be terminal.
A child is born. The husband actually has the audacity to ask if it his child.  My gosh.  There has never been an indication of cheating; even til this day. In my case a special needs child with Autism, ADD, Auditory Processing Disorder, Ocular Motor Disfunction, Learning Disabilities and more on and on.  He is a child that is loved and wanted.  One parent is proactive and the other chooses to hide a head in the sand.  One person starts talking with ultimatums.
"You took him to the park?" Asks the husband.  "You might have had a heart attack!"
One one of the few times out after the birth of the child, a mother-in-law calls.  She asks the sister of the mom that is taking care of the child,"You took him to the park? What if he skins his knee?" The normal sister perks up and answers quickly right back, "He will survive like all the rest of the children in this world!"
Fights continue about how to care for the child.  At six months he is in the hospital.  The husband blames the wife.  Why did you take him to Baby Jymboree?  Your family is always kissing on him.  You don't wash your hands well enough.
Did this have anything to do with his special needs?  Did inducing labor a bit early cause it?  Is it your families genes?  Or, the other side?
As a mother one does the best she can.  The research to help her son leads down a dark realization that all the extra help needed is not always covered or seldom is, by health insurance.  The husband says this is unnecessary.  The mother continues and at least gets her child in preschool early.
Do you know what "Munchausen Syndrome By Proxy," is? Here is a definition, "Munchausen syndrome by proxy is a mental illness and a form of child abuse. The caretaker of a child, usually a mother, either makes up fake symptoms or causes real symptoms to make it look like the chld is sick." The husband says the wife has this.  He says she wants attention for what is wrong with the child?
Everything done by the wife seems to be wrong.  Arguments go on and on.  More details are not needed.  This is the parenting drama until November 25th, 2014.  While in a counseling session with my son's counselor and my husband, it is clear to me.  This will never end.  My son is distressed by his parents.  A divorce or seperation will mean clear concise rules for him.  This will mean no more back and forth between the parents.
Part of this is a child working two parents against another.  Playing parents against one another is something my husband says special needs kids don't do.  I know different.  The other part that is bad is listening to parents go back and forth round-n-round where the carousel will never stop.
This is the "Drag Way to my Divorce or Seperation."  I plan to execute a leave January 2015.  The trial will go through March.  I am leaning toward getting back together to be a one in a million shot.
Please feel free to comment and share your trials with me.  They may help me.
Too much damage done?  My son will be in his last semester  of high school.
My son is important to me but there is a saying that taking care of one's self is primary so caring for others can still happen.

Monday, November 10, 2014

Autism under reported in Minorities?



Please check out this article @
http://www.psychiatryadvisor.com/autism-likely-underreported-in-minority-children/article/381985/?DCMP=EMC-PA_Update&CPN=&spMailingID=9886306&spUserID=ODE4MzExMzE2ODUS1&spJobID=420857923&spReportId=NDIwODU3OTIzS0
The article says autism under reported in blacks and Hispanics. I didn't see a state to state comarision.
It does make me wonder about the l: 88 and l:53. Is autism under reported? too Broad a category to get sufficiant data?
I propose More specific Spectrum varieties, those that Co occur with oTher issues in what%'S and more be defined better so research advan cement can happen faster,
Too many stabs at a vague definition with so many variables decreases the chance of real progress. specifics can push research forward light years.
Also, we need to decrease underserved populations. This is for humanity and Science, Variables by race must be addressed fer proper treatment and the Scientific light that Can be shinned on Autism in general.
These are My opinions. Also, as a scientist, Ikrow defining the issues and plodding forward in a logical, methodical order provide the best outcomes when attacking problems that need to be solved.
Autism and all disorders teach us humanity should realize the luxury of racism is outdated and wrong.

Sunday, October 19, 2014

Movie Judge Reiterates My Son Has No One Once I'm Dead.

Tonight the movie, "Judge," reminded me what I face and feel with regard to what to do for my son.  You see I have no one for him to go to after my husband and I die.  His cousins are busy and have a full life of their own.  I asked one nephew if he would mind being over a trust.  This wouldn't mean he would have to live with my son or take care of him daily.  Only that he would assure he was taken care of by the place he was staying and finances.
My nephew said "No." Did this create hard feelings on my part?  Not at all.   I actually respect his directness and understand completely.
Never the less, the movie reminded me of my situation in being responsible for him.  Yet, how can I if I am dead?  Will he be left to fade into a group home with no relatives visiting. You see he also has no brothers or sisters.  I am fighting hard to make him independent.  I may have a good chance but those scales tip back and forth ever day.  It will be hard to predict for sure.
There is a special needs adult in the movie.  However, there are siblings to help with his needs later on in life.  I hadn't planned to take this away from the movie.  But you see I am having surgery tomorrow on my tongue.  I have a sore that hasn't healed.  I also now have another hard bump in the cheek of my mouth I forgot to tell the oral surgeon about.  Do I have cancer?  There is a good chance.  Maybe not.  I will find out from the biopsy.
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Yet, after the movie and during, it just hit home more that I have no way to have a 100% gurantee where my son will end up.  I don't mean to look to the negative. But with no way to assign a person to look over him, I can't accomplish this.
There are few agencies to accomplish dealing with special needs adults.  What quality of life will this leave those with no relatives that will be living in their time span to check on their care or needs?  This is a problem many of us parents face.
Tonight it was harder for me to deal with because of the added reality of facing issues. I am not being morbid.  Fearing death is not the issue.  What hurts the most is thinking of my son of being truly alone on Earth once his parents are gone.  How will he adjust to living in a world with those that can't understand him as well as family often does?

Saturday, July 12, 2014

Pushing Beings In Labor; CONITUING THROUGH LIFE


 
18, Graduation soon, but  still pushing.
18, Graduation soon, but still pushing.

Pushing Begins in Labor and Continues Through Life

Today is the day after my son turned 18 years old.  Reflecting back, I realize when they told me to push during labor, that was the begining of a continual process.   Whether your child has special needs or is quote "normal," it is a parental job to push children beyond their comfort zone.
Sometimes I have felt guilty for being "General Mommy or Sergeant Mommy;" so nicknamed by dad, my husband Bill.
Bill Adcock husband to Sandra and father of Tanner, now 18.
Bill Adcock husband to Sandra and father of Tanner, now 18.
Tanner was not an easy baby.  He had troubles eating from the start.  He through up and would be considered a colic baby.  Working with doctors and listening to the expereince of my mom(mother of four) resulted in putting rice in each bottle to help decrease the throwing up and weight gain proceeded.
At the age of six months, Tanner landed in the hospital for RSV (Respiratory Syncytial Virus).  Funny now but not at the time my sister recalls that I was not making sense and thought I was kidding when I called her to tell her  You see I was a nervous parent going from the doctor's office straight to the hospital and told her he had RSVP virus.
The hospital stay was almost a week.  It may have been worse for my husband and I to endure than Tanner.  Seeing your child in an oxygen tent and having tests ran in a haze of a short time is traumatic.  Then they tell you to move because you are in the way! Parental rights show up in your eyes resulting in a "Please" being spit out immediately and apoligetically.  He came along fine after about three months of nebulizer treatments, beating on the chest with a suction cup to break up secrestions and being on/off antibiotics.
Tanner was sick off and on quite often.  It seems I can remember all of his early holidays being sick.  My sister, that dresses very professionly all the time, was thrown up on and her car when she took him to the doctor for me right before his first Christmas.  That was one of the first holidays he was sick on.
Tanner weighted 17 pounds at one year old. Both my husband I worried about him.  He didn't or wouldn't eat well sometimes.  He stayed on his formula until he was about two years old or a bit older.  He refused milk.
At thirteen months if was obvious we were dealing with more than one could understand. My husband moved a toy or his cup about an inch or two.  He came back running to move it back to the exact position.  I new then and along with some other things observed there was something "wrong" or not quite right.
I am telling you all this for a reason.  This made it hard to make hard choices when he was older.  Worring about his health and weight gain, we let him start eating an unhealthy diet.  This wasn't at the time but it developed into a stance later on.  This also made being hard on him extremely trying.
Thus, began the parental divide on how to parent.  How do you face the something "wrong" or not normal along with health concerns?  I realized that at a certain point I couldn't go the path of least reistance.  Everyone had advise but I read while seaching for the reasons.  Family said not to worry and my husband appeard to me to like "denial."
Then and there I decided a proactive approach was best.  I proceeded to get Tanner into Preschool at age three.  I pushed for extra therapies like, speech and music.  I enrolled him in Kindermusic because of the benefits I had read about music in special needs and other areas of life.  One of his first sentences he said was sung back to me.   On our way to music class I sung to him, "Now it is time for music, music, music."  He was restless and sung back, "Now it's time for Grandma's, Grandma's!"  I was proud.  He had talked some but not like that.
The school said to make picture books and have him say what the picture was.  I made a jillion picture books.  Tanner would have to say his ABC's as I wrote them in the dirt at the park before he could swing.  Later he would have to write them.
I made 26 pages of huge ABC's on letter size paper.  Sensory issues were present and I read about trying differnt tactile approaches.  I cut out Sandpaper ABC's.  I found the experts that I thought could help me with advancing my son's chances of a better life.  I used the program "Handwriting Without Tears," to help him with writing.  This was on top of what the school was doing for him and the extra therapies I could afford like Speech and Occupational Therapy.
Do you see the pushing going on?  This continues for 18 years.  Tanner has autism so pushing can be a delicate balance.  I have him volunteering to gain job skills.  Do or did I feel guilty for being "A hard A$$?"  Sometimes!
Yet, let us ask the questions of what might have happened if I had given up?  Believed those provider's that were foolish to advise me to put my son in an institution?  Gone the path of least reisistance?  I doubt my son would be where he is today.   This has meant many battles in my marriage and in parenting my son with my husband.
Sometimes those with autism have problems with hygeine.  Tanner doesn't like his hair cut or wash it well all the time either.  I have wrestled with this for years. His counselor said to do one thing and my therapist disagrees.
This means another "Big PUSH" to help him into adulthood.  The ultimatum will be to keep his hair clean with two warnings, with the third resulting in a BUZZ CUT!  I have said this before.  Yes, I am human.  I don't follow through on everything. Parenting cam be DEMANDING.  Fights on how to parent wear you out.  However, this time I have the resolve to do it.
Thus, remember from the start of labor and delivery of your child when they tell you to "PUSH" it means for life not only during birth!

Friday, July 4, 2014

My Dream Summer "Camp Read-All"

I read about a Camp Kindness with the Nebraska Human Society recently.  Children read to dogs.  10421299_10152119777002027_4265526365266506699_n-1

http://www.nehumanesociety.org/site/PageServer?pagename=programs_CampKindness#.U7cDFY1dVy8
I hope to get a camp like this going in Yukon/Oklahoma City Metro Area. I love the idea that kids read to dogs.  This takes away all the anxiety of mis-pronoucing words.  I prefer to work with special needs kids because my son has autism and this is what I know.  However, this is limiting those that need to gain reading skills.
I have a vision where Camp Read-All will have all these activities;
1.  Reading to Dogs                                                                                                                               2.  Working with the dogs on training maybe reading about this.                                           3.  Walking the dogs.                                                                                                                           4.  Using highschool kids to work with the animals and kids.                                                     5. Have middle school kids be a resource for the younger kids on reading skills.                 6.  Reading to the elderly in nursing homes.                                                                                7.  Trip to the library and on how to use this.                                                                                8.  Trip to a local bookstore.
I would look for grants from Purina (has a plant in Edmond, Oklahoma), Pet stores. Literacy sources, and Federal/State sources.
Please if you have any ideas to help make my dream come true, let me know.

Friday, February 7, 2014

A Must for Autism Parents From the NIH; Excellent Help for starting

Please do not be put off by the poetry.  I put this in as a thought provoking exercise. Explore all the things that might affect autism.  Then after you read the poem go to the NIH Sites and get free publications that explain all the poem touches on. Autism, like cancer, has so many threads and variables it is impossible to find one specific cause.  That is why we must explore all threads.
Autism? Simple answers? No! Here is
Sandra’s try at an explanation.
Autism has good graces.
Visit upon us to bless upon.
Doesn’t mean one shouldn’t ask,
“Why? What? When? Where and how?”
God could have intended
You being intentioned in the unhinging of the process.
Vaccination’s that is the key!
Say many with adamation!
I agree for them it could be,
A factor, insult that hit on.
Pharmacist in me says, the study was too small to make it a hallmark.
Flip the coin, drug makers threw around money, plus shouted out!!
Next, a group says environment
Causes problems no doubt.
Environmental insult.
Yep, that is why my child is shut into autism.
Remember here, environmental can be
From chemicals & diseases stalking inside to make their stand.
From, things like maybe Grandpa’s Agent Orange,
To a baby’s hospital stay due to RSV!
May yet wave
The Genetics Flag.
Throw into this mix, I will; smaller families, often an only child
That insists to be totally plugged into away from others.
Oh, how simple it would be
One answer, if could only twas or could be.
Yet, still I want to pose
Older parents, sperms and eggs as a contribution variable.
Not a reason not to conceive!
But to be aware more defects, mutations with age do occur.
Can one really say,
One cause is for autism?
Look at cancer! Common threads
There, still many different scenarios.
Genetics predispose, environmental assaults,
Turns on gene with a society that is ripe in culture and age of parents?
Yet, it matters!
No, it doesn’t matter!
Sound so crazy?
Yes, to help. No because we love and deal with it no matter what!
We learn what can and must be done.
But better realize the blame game must stop.
One answer might be cause in 1% of cases ( just me thinking),
Reality is autism is complex.
Complex, autism really is!
Yet, then is simple too.
Reaching out is what I want to do.
Remember right answers lead to correct therapy n treatments!
Wrong guesses and blame may only
Lead to burying data and wrong wizardly haphazard disasters.
Science, true keeps an open mind!
God is the first and Ultimate Scientist.
Together are we able
To do and can do n be our best.
In some ways the riddle of autism
Is not to be solved!
God means us to be
Who we are as he made us!
Change is something
All of us must do.
Adapting to you and others
Is being kind.
Let us not get behind
Stay in the forefront.
Doing out best to unlock the riddle
As much in prayer; God intends us to do!
I am sure by helping
We learn God’s lessons.
Helping those with autism
I bet could be a society improvement, God intends us to do.
No answer complete do I have;
Except my son is a blessing some may say in disguise!
God we will accept your answers.
Thank you God! Amen!
This post will not be long.  First, let me give you this site url in case you choose to read no futher.  You can wander around and see what is important to you.
http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-pervasive-developmental-disorders/index.shtml#part8
This site is marvelous at giving basic information on autism.  There is a free "Parent's Guide to Autism Spectrum Disorder's."
On the site you will find headings listed below;
  • What is Autism Spectrum Disorder?
  • Causes
  • Signs and Symptoms
  • Who is At Risk
  • Diagnosis
  • Treatments
  • Living With
  • Clinical Trials
There are more publications, plus they are available in spanish.  
I hope this is helpful; my goal is to inform with correct information.  There is so much misinformation out there